PUBH6243

As sovereign nations, American Indian Federally Recognized Tribes are responsible for the overall health and well-being of their populations, as well as controlling research and evaluation activities; and development of formal collaborations. A duly elected Tribal government is responsible for all functions and activities of the Tribe. Tribes have an inherent and legal responsibility to protect Tribal affairs, businesses, and traditional values and customs. Included in Tribal responsibilities is the ability to develop and maintain policies to protect the integrity of operations and guard against predatory and harmful use of data against the population they serve. This is an absolute and non-negotiable function of a Tribe to ensure present and continued viability of all future generations.

This course will provide specific examples of data sharing agreements, Memorandums of Agreement or Understanding, legal basis for confidentially, discuss community readiness, and community evaluations. It is designed to help students understand how to work respectfully and effectively with Tribes and American Indian communities, and to understand the basis of research, evaluation, and collaboration. This course focuses on stakeholder driven: participation, issue identification, data sharing, and benefit to community.

To help ensure ethical and cultural values are protected an increasing number of Tribes are forming their own Institutional Review Boards (IRBs) under 45 CFR 46. The course will offer examples of Tribal IRBs and specific IRB components for American Indian populations.

Tribal governments represent communities with distinctive social, cultural, and spiritual qualities that embody a unique context for the review and conduct of research. This course will provide numerous examples of Tribally developed research and review mechanisms that are tailored to specific community needs and interests.

000458

Every Spring